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    "original_url": "https:\/\/www.nytimes.com\/2026\/10\/02\/obituaries\/brooke-eby-dead.html?emc=edit_na_20261003&nl=breaking-news&segment_id=227455",
    "parsed_content": "AdvertisementSKIP ADVERTISEMENTSupported bySKIP ADVERTISEMENTBrooke Eby, Who Brought Humor and Awareness to A.L.S., Dies at 37After her diagnosis in 2022, when she was only 33, she became a vocal, witty advocate for people confronting the disease.Listen \u00b7 6:26 min Share full articleBrooke Eby in December 2024. Credit...Gesi Schilling for The New York TimesBy Clay RisenOct. 2, 2026, 6:55 p.m. ETSee more of our coverage in your search results.Encuentra m\u00e1s de nuestra cobertura en los resultados de b\u00fasqueda. Add The New York Times on GoogleAgrega The New York Times en Google Brooke Eby, who after being diagnosed with amyotrophic lateral sclerosis, or A.L.S., at 33 brought her story to social media, using her dry wit and irrepressible charm to raise awareness and build connections among the hundreds of thousands of people who also struggle with the fatal disease, died on Thursday in Maryland. She was 37.Her sister, Sarah Eby, said the cause was complications from A.L.S., also known as Lou Gehrig\u2019s disease. She did not provide a specific location.Through videos posted daily to TikTok, Instagram and other sites under the handle @LimpBroozkit, Ms. Eby (EE-bee) discussed the daily surprises, difficulties and moments of levity she encountered as her disease progressed, in the process amassing about half a million followers.She incorporated social media tropes to get her message across \u2014 one of her first videos to go viral was a \u201cGRWM,\u201d or \u201cget ready with me,\u201d a style of post in which someone discusses hair, makeup or clothing while getting ready.AdvertisementSKIP ADVERTISEMENTExcept Ms. Eby, while casually applying makeup, says, \u201cLet\u2019s get ready while I tell you how I got a death sentence before my 30th birthday.\u201dRecruiting her friends and her parents as walk-ons, she posted about dating, decorating her wheelchair and picking out clothing as her disease steadily reduced her ability to get dressed herself.The videos were about more than getting laughs and likes, she insisted, and said she gave about half of what she earned online to A.L.S. research.ImageMs. Eby threw a ceremonial first pitch at a Washington Nationals game in 2024 to commemorate Major League Baseball\u2019s Lou Gehrig Day.Credit...via Eby family\u201cIt\u2019s not inherently fun to follow a disease story, especially these days when everyone is a content creator and you could spend all day scrolling through videos of dogs doing cute things and girls in pretty fashion outfits,\u201d she told BrainHealth.com in 2025. \u201cBut maybe now when you hear about ALS, you picture me instead of just thinking about statistics.\u201dAdvertisementSKIP ADVERTISEMENTMs. Eby was just 29 when she first noticed a tightness in her calf. She initially dismissed it as a result of a strenuous workout, but when it persisted, her sister, a doctor, encouraged her to see a doctor.By the time she received her diagnosis, four years later, she was using a walker to get around New York City, where she lived at the time.A.L.S. is a fatal degenerative disease that attacks a body\u2019s ability to control muscle movement. While it can occur in anyone of any age, a person\u2019s average age at diagnosis is around 50; it is rare for people under 40.Her youth made Ms. Eby all the more eager to share her experience.\u201cI have ALS at a relatable age,\u201d she wrote in a 2025 essay in People magazine. \u201cI could be someone\u2019s daughter, sister, mom, girlfriend, wife. I think people see me and it\u2019s a little more real. It\u2019s more like a shock to the system, and then they start caring more.\u201dAdvertisementSKIP ADVERTISEMENTAt first, she said, she was depressed, and tried to hide her condition. At a wedding, she was so embarrassed by the sneakers she had to wear under her dress that she decided to leave. But a friend persuaded her to stay and make the most of it, and soon the whole party was dancing the limbo under her walker.ImageMs. Eby at a wedding in 2011.Credit...Tim Will photography, via Eby family\u201cThe wedding taught me early on that everyone was a lot more comfortable with my situation when I was laughing, and that came back around to make me feel more comfortable too,\u201d she wrote in People. \u201cIt was a welcome realization after a really grim period of uncomfortable interactions with my friends and family.\u201dIn addition to her social media posts, Ms. Eby founded ALStogether, a community based on the Slack app that connects people with A.L.S. with caregivers, researchers and families.\u201cShe had a capability for making people around her feel less alone,\u201d said Sheri Strahl, the chief executive of the A.L.S. Network, which gave Ms. Eby its advocate of the year award in June. \u201cBrooke took her own visibility and translated it into real community.\u201dOne of her last projects was a collaboration with the clothing brand Silverts, in which she helped design outfits that accommodated the needs of people with A.L.S. and similar diseases.AdvertisementSKIP ADVERTISEMENTIn a video posted the day of her death, she presented some of her items.\u201cI finally get to show you the new adaptive pants from my B.E. Collection,\u201d she said, using a text-to-voice system developed by ElevenLabs. \u201cOr if you prefer my mom\u2019s suggested opener for this video, \u2018Exciting Bottoms.\u2019\u201dBrooke Elizabeth Eby was born on Dec. 22, 1988, in Potomac, Md., where her father, Clifford, was an engineer and her mother, Eugenia (Eiselman) Eby, worked in politics.After graduating from Lehigh University in 2010 with a degree in business information systems, she lived in New York and San Francisco, where she began working for Salesforce.Along with her sister, she is survived by her parents and her brother, Chris.She first noticed her calf tightness in San Francisco, but it was not until she moved back to New York that she began to worry.\u201cIn New York, people will notice when you\u2019re walking slow, and they\u2019ll make sure you know about it,\u201d she told BrainHealth.com.AdvertisementSKIP ADVERTISEMENTImageMs. Eby said she gave about half of what she earned online to A.L.S. research.Credit...Gesi Schilling for The New York TimesShe was still working for Salesforce, and as her condition evolved, the company helped her create an adapted working arrangement to accommodate her declining mobility, including flying her to work conferences on a company jet. She moved home with her parents in 2024.Ms. Eby was struck by the wide variety of responses she received to her posts, though almost all of them were positive.\u201cOne question I get asked often is, \u2018Why do people grieve for people who die that they\u2019ve never met?\u2019\u201d she told The New York Times in 2025. \u201cAnd it\u2019s because you\u2019ve gotten to know this person, and you\u2019ve developed familiarity with the hallmarks of human interaction, which are the face and the voice.\u201dAdvertisementSKIP ADVERTISEMENT Get four individual logins in one account.Add three people to your subscription.Savings for the whole family.Switch to All Access FamilyCancel\u00a0anytime.",
    "published_at": "2026-10-02T22:55:22+00:00",
    "author_name": "Clay Risen",
    "site_name": "The New York Times",
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    "ai_simplified_title": "Brooke Eby Dies at 37, Advocated for ALS Awareness with Humor",
    "ai_excerpt": "Brooke Eby, diagnosed with A.L.S. at 33, used social media to raise awareness and build community for those with the disease, amassing half a million followers. She died at 37 from complications of A.L.S., leaving a legacy of humor and advocacy.",
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